Remi Savioz Glut1 Foundation will hold their second annual Valentine’s Day 5K and 5 Miler on Feb. 11 in North Park.
All proceeds benefit the Remi Savioz Glut1 Foundation (RSG1) and RSG1 Brain Fund at Children’s Hospital of Pittsburgh of UPMC.
Registration is $20 per runner without a T-shirt and $30 with a long-sleeved technical T-shirt. Late registration is $40. Registration deadline is Feb. 9th at midnight. Same day registration begins at 8 a.m. Online registration is encouraged and available at www.valentinesday5k.kintera.org.
The rain or shine race for runners of all ages and experience levels starts at 10 a.m. at North Park Boathouse. Top three male and female finishers in age group will be recognized.
Fundraising is encouraged as all proceeds benefit this local, volunteer staffed non-profit organization. Those not seeking to run can participate in a virtual run or walk.
Race sponsors are New Balance Sports Monitors, Heinz, Eat n’ Park, Emergen-C, Road ID, Raw Indulgence and Dick’s Sporting Goods.
Course is provided by Elite Runners & Walkers and timing is provided by Runner’s High.
About the Foundation
The mission of the Remi Savioz Glut1 Foundation (RSG1) is to fund research, awareness and education of Glucose Transporter Type 1 Deficiency Syndrome and other diseases such as cancer, epilepsy and diabetes affected by Glucose Transporters.
Remi Savioz, 13, of Franklin Park was diagnosed with the rare brain disease at age 8 after a lifetime of seizures, speech and language delay, renal complications, movement disorders and cognitive impairment. The foundation was founded by Samra R. Savioz, Remi’s mother, in 2010.
The RSG1 Foundation provides assistance and support to its broad patient community by providing educational tools for students and school districts that teach children to make a positive impact and teach adults about rare diseases through our “Kids Helping Kids” and “Learning in the Lunchroom Programs.” RSG1 seeks to fund adolescent patient assistance programs in Pittsburgh and other regions with our “Scales for Patients Program.” The foundation created the RSG1 Brain Fund at Children’s Hospital of Pittsburgh of UPMC to better serve patients and the medical community at large. RSG1 will continue to develop and fund programs in Pittsburgh for children with rare brain diseases and children that suffer from epilepsy that are non-responsive to traditional drug therapy. The foundation will continue to work toward its mission until no child remains without a treatment, cure, proper diagnosis or whose lives are improved and enriched by our efforts.
The foundation is a volunteer operated 501(c)(3) that has no paid employees. Volunteer opportunities are available. For more information, contact info@remisglut1foundation.com.